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Showing 6 results for Palliative Care

Ogechukwu Emmanuel, Venkatasalu Munikumar, Ani Afiqah Tuah,
Volume 18, Issue 2 (7-2021)
Abstract

Background: End of life and palliative care remains less popular and underdeveloped in many countries. Palliative care services have been proven to facilitate preference towards good death. The present study aimed to determine patterns and factors associated with place of death in Brunei Darussalam.
Methods: This retrospective study was conducted in 2016 on all cancer deaths (n=801) recorded on the registry of death records in Brunei Darussalam. Data including sociodemographic characteristics and place of death were extracted from the medical records. Statistical analysis of data was done in SPSS 16 using binary logistic regression analysis at significance level of 0.05.
Results: The overall number of cancer deaths increased from 171 in 2013 to 320 in 2015. The highest number of cancer deaths was recorded among those aged 50-59 (31%), 60-69 (22.6%), and 50-59 years (24.7%) in 2013, 2014, and 2015, respectively. Age and living in Temburong district significantly associated with the place of death (P<0.05).
Conclusion: The location of specialized care settings associated with place of death among cancer patients. Our results may have important implication for development of specialized palliative and supportive care for end of life care.

Arvin Mirshahi , Betty Ferrell , Marie Bakitas ,
Volume 22, Issue 2 (6-2025)
Abstract

Palliative care (PC) has become essential for improving quality of life globally, yet Iran faces significant barriers, including limited policies, workforce shortages, and cultural misconceptions. Despite recent progress—such as establishing a national strategy and increasing medication access—service delivery remains limited, especially outside major cities. To address these gaps, the Student Scientific Research Center at Tehran University of Medical Sciences has initiated an international collaboration with the End-of-Life Nursing Education Consortium (ELNEC), in partnership with the American Association of Colleges of Nursing and the Center for Palliative and Supportive Care at the University of Alabama at Birmingham (UAB), to expand interprofessional palliative care education in Iran.

Shima Sadat Aghahosseini , Maryam Karami , Maryam Rassouli, Mohammad Esmaeil Akbari , Hamideh Ebrahimi , Kazem Najafi ,
Volume 22, Issue 3 (9-2025)
Abstract

Background: Palliative care is a holistic approach aimed at enhancing the quality of life for patients with cancer. Given the rising number of cancer patients in Iran, its significance has become increasingly apparent. This study investigates the effect of palliative care on the quality of life and satisfaction of patients with cancer.
Methods: This before-and-after quasi-experimental study was conducted in 2024 on 320 patients with breast, tongue, stomach, thyroid, osteosarcoma, and colon cancer at a teaching hospital in Tehran, Iran. Participants were selected through convenience sampling based on eligibility criteria, including being over 18 years of age, having literacy, being able to speak Persian, and being psychologically stable. The quality of life and life satisfaction of patients were assessed before and after participation in a structured palliative care program. The intervention consisted of six two-hour palliative care sessions, delivered over two months. Data were collected using the Satisfaction with Life Scale (SWLS) and the EORTC QLQ-C30 Quality of Life Questionnaire. Data analysis was conducted using SPSS software, version 26, and a paired t-test was employed for statistical evaluation.
Results: The results indicated that the participants had a mean age of 50.67 years, with a standard deviation of 13.23 years. After receiving palliative care, the overall quality of life score, along with its dimensions (except for emotional functioning, sore throat, and diarrhea), showed a significant improvement (P < 0.001, Cohen’s d = 2.36). Moreover, the intervention led to a significant improvement in patients' life satisfaction, with a p-value of less than 0.001 and a Cohen’s d of 1.01.
Conclusion: The study findings demonstrated that palliative care services, typically provided to individuals nearing the end of life, enhanced the quality of life for cancer patients. Policymakers should prioritize support for patients, and healthcare managers must collaborate to improve and provide palliative care services with qualified personnel, especially nurses.

 

Zahra Arabi , Arvin Mirshahi , Hosein Kazemi Zadeh , Shima Haghani , Anand Iyer , Rachel Wells , Marie Bakitas , Mehraban Shahmari , Arpi Manookian ,
Volume 22, Issue 4 (12-2025)
Abstract

Background: Chronic obstructive pulmonary disease (COPD) is a progressive, irreversible respiratory condition that imposes a significant physical and psychological burden, often leading to a poor quality of life. Although palliative care can help address these challenges, in Iran it is typically limited to cancer patients and is not commonly provided to those with COPD. Globally, the early integration of palliative care for chronic illnesses is expanding. The present study aims to investigate the feasibility and acceptability of an early tele-palliative care intervention for patients with COPD in Iran and to explore its potential effects on quality of life, anxiety, depression, and emergency department readmissions.
Methods: This randomized controlled feasibility trial protocol involves a 3-month early tele-palliative care program delivered by two nurse coaches, targeting patients with COPD. Participantswere randomly assigned to either the intervention group (n = 26) or the control group (n = 26) using permuted block randomization. Both groups received traditional COPD care; however, the intervention group also received six weekly telephone sessions and six weeks of follow-up support via phone call and WhatsApp Messenger. The primary objective was to assess the feasibility and acceptability of early tele-palliative care, measured through recruitment and attrition rates, questionnaire completion rates, patient satisfaction, attitudes toward the intervention, and adherence to the intervention. The secondary outcome included changes in quality of life, anxiety, depression, and hospital readmissions. These were measured using validated instruments at two time points: Baseline (pre-intervention) and three months post-intervention. Statistical analyses were performed using SPSS version 22, including the independent samples t-test, paired samples t-test, chi-square test, and Fisher’s exact test. Analysis of covariance (ANCOVA) was used to compare the mean outcomes between the two groups while statistically controlling for the effect of baseline values. Statistical significance was set at p < 0.05.
Conclusion: This study protocol aimed to determine the feasibility and acceptability of an early tele-palliative care intervention for patients with COPD in Iran. The findings provided essential data to inform the design of a future large-scale clinical trial and support the potential integration of early telehealth palliative care into standard COPD management in the country.

 

Hadis Ashrafizadeh , Salem Said Al Touby , Maryam Rassouli ,
Volume 23, Issue 1 (5-2026)
Abstract

Palliative care is a critical component of Universal Health Coverage and a key approach for reducing serious health-related suffering; however, major educational gaps persist among nurses across the Eastern Mediterranean Region. Although nurses deliver palliative care in hospitals, communities, and homes, many report insufficient knowledge, skills, and confidence, especially in end-of-life communication, complex symptom management, and psychosocial–spiritual support. These gaps are driven by limited curricular integration, shortages of trained faculty, resource constraints, and scarce post-graduation training. Digital and virtual education models (e.g., Project ECHO, web-based modules, and virtual simulation/VR) offer scalable solutions by improving access, reducing time and cost barriers, and strengthening competence and self-efficacy. These models need to fit local health‑system capacities and the cultural and religious norms of Middle Eastern communities, especially around family‑centered decisions and sensitive conversations. Continued investment in faculty training, technology, and mentorship is essential for bringing culturally responsive virtual palliative care education into nursing programs.

Nafiseh Ebrahimi, Robert Truog, Mahnaz Shoghi,
Volume 23, Issue 1 (5-2026)
Abstract

Background: Nurses are continuously present at the bedside and work closely with both children and families; therefore, their perspectives can provide a detailed understanding of end-of-life care. This study examined the quality of dying and death among hospitalized children from the perspective of PICU nurses and explored nurse-related factors associated with their evaluations.
Methods: In this cross-sectional study, 176 nurses working in the PICUs of four teaching hospitals (6 PICU wards) in Tehran participated. Inclusion criteria were at least a bachelor's degree in nursing, at least 12 months of PICU experience, experience caring for terminally ill children, and no personal history of losing a child. A census sampling method was used. Data were collected by self-report using the PICU-QODD (Quality of Dying and Death) questionnaire. Independent t-tests, one-way ANOVA, Pearson correlations, and multiple linear regression were used.
Results: Most nurses were female (81.8%). The overall QODD score was 68.44 ±15.6, suggesting a moderate to favorable perceived quality. The highest domain scores were observed for continuity and coordination of care (84.4), fulfillment of the parental role (77.04), emotional support for the family (76.91), and pain and symptom management (76.81), whereas the physical and instrumental needs of the family (49.1) and spirituality and religious-cultural issues (33.46) had the lowest scores. In the multivariable analysis, only fixed work shift remained independently associated with higher QODD scores (B = 7.01, 95% CI (0.343,13.688)).
Conclusion: PICU nurses rated children's quality of dying and death as generally acceptable but identified shortcomings in spiritual and practical support for families. Promoting continuity of care and providing targeted education on holistic, family-centered end-of-life care may be beneficial.


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